Yes. SMA Type 1 children with tracheostomy and invasive ventilator dependency require round-the-clock nursing. We build dedicated, trained teams of registered nurses for SMA Type 1 packages, with all staff signed off as competent to the child's specific equipment and protocols before care commences.

Yes. We support children with SMA in mainstream and specialist educational settings, providing clinical cover throughout the school day. We liaise with school nursing teams, SENCOs, and specialist provisions to ensure the child's clinical needs are met safely in the educational environment.

Disease-modifying treatments are changing the SMA trajectory significantly, many children are gaining or maintaining function that previous generations did not. However, these treatments do not eliminate the need for clinical homecare in Type 1 and many Type 2 children. We work closely with SMA specialist centres to ensure care packages reflect the individual's current clinical status, which may be different from the 'textbook' SMA picture.Disease-modifying treatments are changing the SMA trajectory significantly. Many children are gaining or maintaining function that previous generations did not. However, these treatments do not eliminate the need for clinical homecare in Type 1 and many Type 2 children. We work closely with SMA specialist centres to ensure care packages reflect the individual's current clinical status, which may be different from the 'textbook' SMA picture.

Yes. Transition for young people with SMA is a high-risk period. We work with both Children's Continuing Care and Adult CHC teams to ensure continuity, keeping the same care team wherever possible, updating care plans to reflect changing needs, and coordinating with adult neuromuscular services.